Celine Dion In an interview, he spoke about his struggle with stiff-person syndrome. Hoda Kotb, Scheduled for release on Tuesday, June 11th. “It feels like someone is strangling me, like someone is pushing my larynx towards me,” the 56-year-old said.
The “My Heart Will Go On” singer added, “You might have pain in your abdomen. You might have pain in your spine or ribs. But when you stretch your legs, it feels like they stay there… Or when you cook, your fingers or hands get locked in place. It’s like you’re in a spasm but can’t unlock it.”
The health update comes after she revealed her diagnosis in December 2022. “I’ve been diagnosed with a very rare neurological disease and before I wasn’t ready to say anything, but now I am,” Celine says in a teaser for the new documentary. I am: Celine Dion, It will be released on Prime Video on June 25th.
Autoimmune diseases “A rare motor dysfunction characterized by involuntary stiffening of axial muscles and superimposed painful muscle spasms, often triggered by startle or emotional stimuli.” Mayo Clinic.
“I am so grateful to everyone who has supported me in this journey,” she said in an Instagram post announcing the documentary in January. “The last few years have been a huge challenge for me – from discovering my illness to living with it, learning how to cope with it and not letting it define me.”
After a battle with SPS, Celine was forced to cancel. Courage World Tour. “It’s not hard to do a show, you know? It’s hard to cancel a show… I work hard every day but I have to admit, it’s been a struggle. I miss the shows, I miss the people. I miss them. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. But I’m not planning on stopping,” the “It’s All Coming Back to Me Now” hitmaker admitted.
“Overcoming this autoimmune disease has been one of the most difficult experiences of my life, but I am determined to one day return to the stage and live as normal a life as possible,” she wrote on Instagram on International Stiff Person Syndrome Awareness Day, March 15.